Intractable Pain, Obstructive Sleep Apnea & Medical Cannabis: Tony's Story

Meet Tony, a LeafLine Labs patient who lives in Apple Valley, Minnesota. He is your not-so-typical ‘retired’ (as he likes to call it) 25 year old. He graduated from Augsburg College with a degree in Management Information Systems. He’s sharp, smart, and has a great sense of humor. A self-proclaimed music critic, he runs his own blog where he shares his thoughts on the best and worst of the industry. He enjoys going to movies, playing video games, and spending time outside as much as he can.

Tony grew up walking, running, and participating in all the activities of a typical childhood. When he was 4 ½ years old, he started showing signs of Duchenne Muscular Dystrophy (DMD), a disorder of progressive muscular weakness most commonly found in boys. To help manage symptoms of DMD, Tony began taking steroid injections.

Although the steroids helped to slow the progression of DMD, they did not come without side effects. Most notably, he stopped growing around age 12. He also experienced cataracs, high blood pressure and often crippling anxiety. His appetite was small, at best, most of the time. He was later diagnosed with Obstructive Sleep Apnea.

Tony’s calf muscles were the first part of his body weakened by DMD, which caused him to walk on his tiptoes. In middle school his overall mobility was quite affected. By high school Tony was using a wheelchair.

The combination of side effects from steroid injections, the chronic pain from sitting in a wheelchair all day, and the stress and physical toll a lack of sleep takes on the body led him to to enroll in the medical cannabis program here in Minnesota in November 2016.

Prior to enrolling, Tony and his family--mom, dad, and brother--took part in petitioning the addition of Intractable Pain to the medical cannabis program in Minnesota. They’ve attended rallies at the capitol and consider themselves advocates for cannabis as medicine.

Tony and his parents struggled to find a physician who would certify his condition. Eventually, they were referred to a physician who was willing to help and was actively certifying patients for the medical cannabis program. “It was challenging. Worth it, but I wish it was easier,” his mother, Carol said.

Since beginning cannabinoid therapy with medicine from LeafLine Labs, Tony’s life has been changed for the better. His quality of life, as well as his family’s, has increased significantly. His appetite is back, he has real, lasting pain relief, and his anxiety is manageable. He can sleep through the night. He can spend longer periods of times doing the things he loves, and he can also spend more time in his wheelchair without his back hurting. He is completely off steroids. “It makes everything better,” Tony said.

As parents and caregivers, Carol and Steve, have found an incredible amount of relief in seeing the changes in their son’s mobility, mood, and overall quality of life. His diagnoses have helped them, as well as his brother, appreciate their own health and not take anything for granted.

Tony and his family work every day to embrace and embody the adage “Live life to your fullest," and medical cannabis has been a key component in allowing all of them to do just that. One of the perks of his situation? “Handicap parking,” Tony joked. Remember that great sense of humor?

Tony’s piece of advice for anyone considering enrolling in the medical cannabis program here in Minnesota: “Don’t pass it by without giving it a chance…”